PatientsLikeMe is the world’s largest personalized health network, and one of the largest repositories of patient-reported, cross-condition data available today. More than 600,000 members use PatientsLikeMe to share in their own voice, learn, connect with others, track their progress and express their health status in medically relevant ways. In partnership with patients, biopharma companies, providers, payers and other healthcare stakeholders can learn from the patient experience to help advance healthcare. PatientsLikeMe is a trusted source for real-world disease information and a clinically robust resource that has published more than 100+ research studies.
PatientsLikeMe was born out of frustration. When Stephen Heywood was diagnosed with ALS in 1998 at the age of 29, his brothers Jamie and Ben tried to treat his symptoms and slow his disease as it progressed. But finding information to guide their decisions was time-consuming and difficult.
Jamie and Ben, along with family friend Jeff Cole, initially launched PatientsLikeMe to connect ALS patients, but it quickly expanded, and in 2011, we opened the website to all patients and all conditions. Today, 600,000+ people use PatientsLikeMe to report on their experience with 2,800 conditions.
They’ve generated 43 million data points about disease, creating one of the largest repositories of patient-reported, cross-condition data available today. It all started with Stephen, and now it’s helping many more improve their outcomes, and doing a whole lot of good.